in the last few weeks, the relative routine of chemo treatments has fallen into place: every three weeks there is a different combination of chemicals designed to kill the fast growing cancer cells, which in their virulence take out other fast growing cells, like hair, red and white blood cells, and gut lining cells as well. then there is the fatigue, the nausea, and gradually the swing back up to feeling better again. i had given logan a buzz cut in mid january, before his hair began to come out. since the second chemo on january 24, the remaining short hair started to rub onto the pillow, so we have shaved off the rest. logan has gained a little, lost a little, a gentle see-saw reflecting his waxing or waning appetite, or more accurately, his simple tolerance for food.
the last week has been different in that we experienced some new events: visiting nurses, who make daily visits to monitor vital signs and administer shots to stimulate stem cell production, also draw blood to follow the blood counts. last thursday night his oncologist called for me to bring logan in for a blood transfusion in boston the next day, the first such call. two days later, he had a fever and brian took him to cape cod hospital; patients on chemo are sent back to children's hospital to receive IV antibiotics, and so it was an ambulance ride for logan.
i flew over so that we could watch the superbowl together, my one birthday wish. his roommate this time was a 14 year old inner city boy whose mother and 2 aunts did not know the rules of football. so while carl calmly explained, we mom types were hootin' and hollerin' and having a fun time. well we all know the patriots lost, but logan and i were really happy to have seen it with such animated neighbors.
today is day 4 of his current impromptu hospital stay, and a CT scan was done to measure the progress of the tumors' shrinking. the larger one near his kidneys has decreased by 20-25% of its original size, and the smaller one on the lymph node has been nearly halved. he no longer needs drastic blood pressure meds because the kidneys and blood vessels are no longer being compressed by the giant bully tumor. we feel badly for the patriots, but these numbers dwarf the superbowl score dramatically... and we have done only 2 of the 5 chemo rounds so far. (did you catch my reference to the tumor as being a 'giant'? the patriots will be avenged.)
out of the kindness of a cclcs family, 2 celtic tickets for tonight's game were made available for logan. he has done well enough with his recovery from this week's blood infection that children's hospital is letting brian take logan to the game tonight. they will return to the hospital for another day, but it feels like a beautifully timed celebration for this wondrous news. that the tumors are on the retreat, and though there are still unexpected difficulties day to day, in the long run we are making palpable, measurable progress.
Wednesday, February 6, 2008
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15 comments:
WOW I never knew that "Shrinkage" could be such great news. It now has new meaning as apposed to what happens to the surfer's in Truro waters.
Maybe we should do a special blood drive for Logan's next transfusion. It would feel great to all be able to give in support of Logan's needs.
Check with the Doctors and sign me up.
Kim, Logan, everyone-- It is so wonderful to hear such good news, there must be some terrible down times too and you are in our thoughts all the time. We can't wait to see Logan back to full health, and it looks like it won't be very long at all. Love, Heidi, Roger and Marisa
Hey Logan and family!
I check this blog daily; I love hearing your updates. I'm so glad you're able to go to that celtics game! and I think it's pretty school that our school helped ya out with that 8) ;) but anyway! it's so great to hear the news of shrinking tumors and happy patriot roommates! I'll keep checking in to hear my triumphs that you all are undergoing :D
Blessing, Prayers, and Wishful Thinking :D
- Alex N
(oh what a positive signature that was :p)
ps.
umm since it's so late you can see all those spelling errors .. I HAVE TO FIX THEM!
it's pretty cool*
checking in to hear YOUR triumphs... not mine*
blessings*
JEESE!!
okay - Alex :)
Hey Logan
Your blog is great - it nice to be in the know about your progress. You are on a long, grueling march towards restored health and we are rooting for you at each step.
XXX Kristina
Go Logan! What good news! Hope you had a great time at the game!
-Mrs. Murphy
Hey logan, I am so pumped to see you on Sunday, and I am so happy that you got to see the Celtics. I was at Charter and saw the posters for the fundraising. Everyone is really sending you good vibes, and the shrinking tumors are such a good sign!!!!
An inspiring story from an inspiring person... I heard about this a few weeks ago and have been following your progress. I have had complete confidence in your recovery. Hearing about the latest progress is great.
I noticed on Wednesday the Celts looked to have an edge over the Clippers... evidently, that was you.
My mom, dad, sister, and brother all wish you a speedy recovery and the Kugler household thinks of you.
With love, Tyler.
Dear Logan and Kim and family:
I ditto all of Tyler's thoughts and wishes and prayers. Our whole family has been saying and singing prayers for you daily. So great to hear good news and to see you with a smile even as you fight this beast....we all know the quiet, calm strength and perseverance that is you, Logan, and we are all here to support you....
P.S. i worked as a pediatric psychologist (yes even at Children's) in pediatric oncology , so if you ever want tips on how to self-hypnotize or use imagery to cope with pain or stress, I would be happy to help you.
With love,
Lois
Logan,
Great news on the tumor front. Granbea is always asking how you are progressing and she was pleased with your news! By the way,now that Kim has posted your latest pic, I can see the family resemblence much more. Thoughts and prayers are with you.
Love
Rick Karen, Steve, Dan, Mark & Granbea
Hey logan. im so happy that your doing better. its great to know that everything is going so smoothly :]. im glad you got to go to a celtics game..that must have been a blast. we miss you budddy
--krystal ketler<33
Logan and Kim-I had to laugh at several of the messages. As a store owner, I, too, thought shrinkage was a bad thing. That is GGGGGREAT!!!!! news!!! And yes, with your new 'do, all you need is a lollipop, Kojak! (You may be too young to get this reference....ask your mom!) I have been battling the flu for a week, so I feel better knowing that you are doing better. And how awesome to go to the Celts game. Life just keeps getting better! :D Time flies, so you'll be outta there before you know it.
Lots of love and prayers,
Aunt Carolyn
Logan,
Keep kickin' it to those tumors. We think about you daily at CCLCS. People that don't even know you, and those that have known you briefly (such as myself), look everyday for encouraging words of your progress. Thanks for giving us some.
Ultimate frisbee seminar will be coming up soon. It won't be the same this year without your diving one-handed freakishly amazing catches.
-Mr. Williams
*Keep March 2nd open.
Thinking of you Logan, especially after I just graded my response journals and a few students read "Hitchhiker's Guide to the Galaxy." I remember how funny you thought that book was when you read it last year. Keep smiling :).
Mrs. Woods
HI Logan,
Hope you're feeling relatively well! We're all gearing up for vacation -- I'm hoping to drop by for another visit with Mrs. Murphy next week if you're up for it.
Thinking of you,
Mrs. Garran :)
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